Curran Family of Ridgefield Hold Kindness Over Muscular Dystrophy Benefit, Raises Record Breaking $258,000.00

Kindness Over Muscular Dystrophy benefit at Captain Lawrence Brewing Co. in Elmsford on September 11. Local residents Jessica and Christopher Curran raised awareness and a record-breaking $258,000.00 for Kindness Over Muscular Dystrophy to advance research towards a cure for Duchenne Muscular Dystrophy. The Curran's 10-year-old son Conner was diagnosed with DMD at the age of five. 

With a theme of Fierce Determination against Duchenne Muscular Dystrophy – the Curran’s raised awareness and raised much-needed research dollars to find a cure for their son Conner and thousands of kids like him. The Curran’s shared that their favorite memory of the night was Conner’s entrance to the event. Many members of the Ridgefield High School Lacrosse Championship team were there to support their Honorary Captain Conner Curran and walk with him up to the stage.

The Curran’s stated that “Our hearts are full of gratitude for these special young men, and we appreciate their participation more than they can imagine.” Scott Vaccaro of Captain Lawrence Brewing Co generously offered his venue again for the KOMD benefit to a sold-out crowd of over 500 in Elmsford, New York. Attendees enjoyed DJ entertainment, dinner, cornhole tournament, silent auction, raffle and a release of limited edition #KOMD beer.

Proceeds from the event will be directed towards research to cure DMD, a fatal genetic disorder affecting muscles of the limbs trunk, lungs and heart. This event is also kindly sponsored by the InTouch Group Advertising, Amy Mosley and Partners, Forte Financial, Gramercy, LMS Entertainment, Y Design, Ack Beverage, Ask Bio, Cellar XV, Certa Pro Painters, Fairfield County Bank, Facebook, Fortis Lux Financial, Hess Technology Consulting, Prime Time Lacrosse, The Sisca Organization, Sports Tech Construction, Swimfinity, Think Visual, and Quad Marketing

The following amazing restaurants and individuals are providing food, beverages, entertainment and ambiance:

• Captain Lawrence Brewing Co

• Boars Head

• Carriage House

• Chez Lenard

• Crafty Frites

• Dinh Dinh

• Lexington Square Café

• Melissa Barca - First Smiles Photos

• Meso Mediterranean Cuisine

• Mobile Pie

• Pumphouse Wines

• The Cookery

• The Farmer and The Fish

• The Rye Grill and Bar

• The Whitlock

• Think Visual NYC

• Sleight of Hand Magicians

• Quaker Hill Tavern

• Village Social

• What’s Cooking

Duchenne Muscular Dystrophy is a progressive muscle-wasting disease that primarily affects boys. Currently, most do not survive past early adulthood. As devastating as this diagnosis is, the Currans are full of hope for Conner and so many other DMD children. Scientists are on the cusp of actually finding a cure.

Exciting new research and gene therapy clinical trials are currently being conducted that may change the course of this disease forever.

Conner is an engaging thoughtful young boy who is always ready with a warm bright smile that lights up his face. This smile amazingly remains on his face through numerous blood draws, MRIs and muscle biopsies. Conner has had to face a slow grueling process of losing muscle – all the while witnessing his siblings and friends gain strength and mobility. He has had to contend with the fact that he just can’t hike up a mountain trail anymore or run the bases fast enough not to get tagged out. Even the simple act of getting up off the ground has become increasingly difficult for him. No matter how tough a kid is – this disease takes an enormous amount of courage to face every day.

Conner is fierce and he faces it head-on but even a fierce guy like Conner needs help. Given Conner’s prognosis, the Currans have pledged to do absolutely everything in their power to advocate for Conner and to help raise funds to find a cure. Jessica and Christopher are humbled and grateful for the support they have received from the Ridgefield and Westchester communities who have gathered together to help them achieve their advocacy and fundraising goals. The fact that Conner sees his parents working hard to do everything they can to raise money to find that cure gives him hope.

To date, Kindness Over Muscular Dystrophy has raised over $1.4 million and they have funded cutting-edge research and clinical trials. But even with this significant input of funds, there is still so much more to accomplish. Jessica and Christopher understand researchers are making great strides, but they are in a race against time and these young boys don’t have a lot of time. They believe the time to act, and act decisively, is now.

The Curran’s ask for your support – “Be Fierce Against DMD for Conner and donate on our website. No kid – No family should have to face this. With your fierce support - we can defeat DMD together. Thank you!” With the help of the community these kids can get over the finish line to strength and health!

To learn more about Duchenne and to contact them with corporate sponsorships and donations visit www.KindnessOverMD.org

R
Submitted by Ridgefield, CT

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